Today I am alive. A little sad and a bit depressed, but happy to be alive.
Having sarcoma is different. It’s the sabre tooth-version of the mountain lion. It’s the deadliest of all the poison snakes.
Unless you have it, you don’t get it and you never will.
Don’t try to encourage me with “You got this”—because I don’t want it. I never asked for it in the first place. And saying “You can beat this,” makes me want to throw up some days.
I just need you to acknowledge that maybe I can’t, and that possibility just totally sucks.
Most of all, don’t say some trite, meaningless little words and walk away. Hold my hand and let me cry. I just need to do that sometimes because it’s really hard some days. Not all days—but maybe today is one of those tough days.
Hug me really tight (you won’t catch my cancer, honest). Hug me every time like it’s the last time because it might really be the very last time.
This beast is cruel and vicious—and so very unpredictable. You never know what it’s got in mind, or when it’s going to bite.
First, always pursue treatment with a sarcoma specialist at a sarcoma center. (https://sarcomaalliance.org/ is a great resource)
Then get a second, or even a third opinion. Pursue these opinions as if your life depended on them because it does.
Insist on genetic testing; this will help the sarcoma team identify the best treatment options. Don’t pay attention to survival rates or statistics. Research is limited because this form of cancer is so rare, and that translates into scant information and skewed statistics.
Use social media to find others who know what you’re going through. Facebook has several sarcoma groups, some even dedicated to specific subtypes. Remember Jesus loves you and will be by your side on every single step of your journey.
Image Credit: Patricia and Friends
You may also like: Faticharan and the Shoes of Faith
here at FaithHope& Fiction.
Honest Thoughts of a Sarcoma Warrior
by Karin Ryan